Oscar King was not expected to survive after he was born at a tiny 27 weeks - but he's now six-months-old and is recovering well
This time last year, Katy and Chris King were just like any other parents-to-be - excitedly awaiting and preparing for the arrival of their first baby.
That was until Katy had a scan at 27 weeks and then had an emergency caesarean section to bring their baby into the world almost three months earlier than he might normally have.
Sadly, Oscar was born with a rare chromosomal abnormality called Trisomy 9 Mosaicism - this means that in some of the body's cells, chromosome 9 appears three times rather than just twice.
Oscar, who was born at the Chelsea Children's Hospital in London, was called what is known as a "micro-preemie", which is a baby born before 30 weeks or alternatively those who weigh less than 2lbs.
The little lad weighed just 1lb 6oz and was not expected to survive by doctors.
In a Facebook post, Katy, who suffered from placenta insufficiency, revealed the couple's heartbreak over not being able to do the normal things that new parents can.
She wrote about the many friends and family members who had had babies at or around the same time and their social media posts: "Every single picture is celebrating a huge milestone like sitting up, laughing, smiles.
"Like many others, I look at these photos and videos with a big smile on my face, proud of these little'uns and everything they achieve. Proud of my friends and family who are navigating their way through this big world of parenting and producing happy little children.
"But with every smile, it's tinged with a touch a jealousy and upset. Why can't my baby work out how to breathe on his own? Why can't he hold his head up? Why can't he seem to see anything? Why can't he hold things in his hand? Why is he still struggling with the one-month milestones, let alone the four-month milestones?"
Katy continued to explain in the Facebook post that Oscar's condition means that he may never do any of those things, but that she and her husband, who live in Surrey, have now "come to terms" with the reality of their situation.
She continued: "But it doesn't change the fact that we mourn the child that we had planned and it doesn't change the fact that we wonder if he will recognise his own name or ever say 'mummy' or 'daddy'."
Katy, 25, and Chris, 26, were able to take Oscar home in March, but he had to be taken back after they had some worrying issues with feeding, but they hope he will be able to bring him home properly in July.
"We look at our future with slight hopelessness, wondering how we will cope. We hunt down specialists who can explain things to us, who can make an impossible situation make sense. We get angry and frustrated when our questions go un-answered. At the very low points, we blame each other, shouting at opposite side of the bedroom before collapsing in a heap of exhaustion and apologies.
"We then take a step back, have a deep breath and remember."
Katy explains that they had a consultation with a specialist a couple of weeks ago who gave them a bit of a reality check: "They informed us that Oscar should have been miscarried at 15 weeks. We shouldn't have gotten anywhere close to 27 weeks.
"The doctors don't understand. The geneticist doesn't understand. The obstetricians don't understand. No-one understands how he has managed to grow all his arms and legs. No-one understands how he has grown all his organs, bar one unnecessary kidney.
"But we understand. He is our miracle. Why we were on the receiving end of this miracle I don't know. We're not the best Christians, we're not the nicest people. But we have been given a miracle. One who will move at his own pace and will do things his own special way."
She ended the post with some words of uplifting encouragement for any other parents going through a similar situation: "So for every special needs parent out there... You're allowed to mourn. You're allowed to sigh. You're allowed to wonder 'what if we waited another year?'. It's ok. We're right behind you."
Katy and Chris are now raising money for the Neonatal unit at the Chelsea and Westminster hospital after they played such a critical part in Oscar's short but eventful life.
She said: "The work that the Neonatal Unit did (and continue to do) was amazing. Six months later, he is still at Chelsea, but he is nearly ready to come home!
"We want to raise some money for the Chelsea Children's Hospital Charity, to be used specifically in the Neaonatal Ward. We are especially interested in anything that can help strengthen the bond between parent and baby as we felt like we didn't really bond with Oscar until he was moved up to the children's ward."
The crowdfunding page is hoping to raise £1,000 for the ward.
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